Monday, May 21, 2007

Myelograms Suck

Nerves are not highly visible on x-rays, CT scans and MRIs. Radio-opaque dye, however, is...well...opaque on x-rays, CT scans and MRIs. If one was to surround nerves with this dye, you may or may not see the nerve outlines depending on the location of the dye. That is the gist of a myelogram. Oh yeah - they inject the dye into your cerebral spinal fluid (CSF) and you have to lay on your back for about 24 hours.

The value of the myelogram is that the doctor can see the nerve outlines and determine if the nerves are receiving pressure from another object such as a disc, bone or scar tissue. This gives the doctor a map which can be used to evaluate surgical and non-surgical options.

I did not enjoy this procedure. The internet has a lot of descriptions of what is actually done. In all cases, your back is cleansed and numbed with a local anesthetic. Then, with fluoroscopic (x-ray) guidance, a needle is passed through the skin, fat, muscle, etc and into the fluid around your spinal cord. Once the needle location is verified by withdrawing a small amount of CSF, the dye is injected.

This is where the descriptions of the test on the internet vary. Some explain that the needle remains in your back for the remainder of the test. Others state that the needle is removed after injection of the dye. I was lucky in that mine was removed immediately after the dye injection. At this point, the x-rays begin. I was laying on a table with the ability to tilt. And it did, indeed, tilt. First, they rotated the table so that my feet were in the air and my head was down. This allows the dye to move towards the brain. Then, the table was tilted the opposite direction and I was practically standing up.

When the table first began to move, I started to feel hot. I felt the sweat building on my forehead, then on my back and legs. I told the nurse that the room felt really hot. She got a cool, wet towel and placed it on my neck and head. Suddenly my ears started to ring and I began to feel faint. I told them that I was going to pass out. They seemed unmoved by my complaint and continued the test for another minute or so. I complained that I was feeling faint again and was sure that I was going to be out. The neuroradiologist quickly leveled the table and told me to roll onto my back and pull my knees up. I did so and was no longer faint. I still am not sure if the dizziness was caused by the tilting of the table or panic and anxiety. I lean towards the anxiety theory, but don't know that I have a way to prove it.

After the x-ray portion of the test was completed, I was wheeled on my gurney into the hallway to wait for the CT scan. There was a line of several patients ahead of me, so the nurse brought my wife back to wait with me. We joked around a little. I was so glad the test was over. It was nice to have her with me again.

The CT scan couldn't have taken more than 2 minutes. The procedure was uneventful except for trying to move yourself, laying flat on your back, from the gurney to the CT table. When it was over, I slowly transferred myself from the CT table back to the gurney. I felt this horrible pinch/pain on the left lower side of my back. I gave a good loud grunt in an attempt to disperse the pain. I later learned that my gown had been taped to my back to keep it out of the lumbar puncture area. When moving from the CT table, my gown got hooked on the table and tore the tape away. I was presented the lovely gift of a bruise from this activity.

After all this was done, I was taken back to a recovery area where I was to rest for 2 hours before I could go home. This process is to give the spinal sac hole time to heal over and prevent CSF leakage. If too much fluid is lost, the patient can get a terrible headache lasting a couple of days.

I was starving since it was now 3:30 in the afternoon. Jane sat with me and helped me eat. The bed was supposed to be up to 30 degrees from horizontal. The nurses did not have a good ability to estimate 30 degrees so I was basically laying flat. If you've never tried it, you should try eating and drinking while flat on your back. Coke makes you choke with every drink and applesauce is almost impossible.

24 comments:

Kim said...

You're right. Myelograms do suck.

Surgery, I had it about 12 years ago when I was in my mid 20's. Laminectomy/discectomy at L5-L6. Yep, I'm a freak with an extra spine bone. Go me!
Anyway, I did spectacularly. Surgery Wednesday, home on Saturday, shopping in Kmart Sunday.
But, pay attention to your doctor and do everything he says. I was not even allowed to carry a dinner plate for three weeks. Therapy wasn't too bad, and I was only left with a very minimal amount of numbness and a loss of one reflex in my foot. Not due to anything the surgeon did, but due to my putting the surgery off for so long that I did the damage to myself.

You are going to do great! Especially with Jane taking such good care of you.

Meredith said...

That sounds like a terrible time! I hope that you're feeling better, and I'm sure Jane is an excellent nurse. Tell her you need a sponge bath. That should be fun!

Ms Spotdog (Kel) said...

I wish you the best of luck!

My ex went thru simular back troubles with it all starting at L4/L5 but then domino-ing up/down. He had the injections, laminectomy/discectomy, myelogram, etc. and then ended up with triple-level fusion and is fully disabled. Not a fun road (hence the EX - but be assured there was more going on. Let's just say Christopher Reeves he is NOT!)

My main advise is to never, never take the drug Neorontin. It is an evil drug.

chris said...

palo, anyone who endures a myelogram and the resulting surgery is totally a man's man!
this is a female report however. laminectomies at C2-3 and later 4 and 5 were no fun. but they put a hunk of hardware in at L5 and below, making me wear one of those ginormous washing machine-like braces, and that was the big bite. it's boring but when they tell you to do what the docs' say as long as there's no pain- it's the one true thing. you'll beat this thing faster than you think! go for it!

Lisa said...

Paco, how cool you started a blog! And by the way, Jane's readers have seen your picture, so your "moob" description can't convince us you're not good-looking. :)
My mom's experience with back pain was pretty similar to yours; she tried epidurals, physical therapy, etc. and finally decided to have surgery last fall. The recovery wasn't fun, by any means, and she did have to wear an unwieldy, incredbily heavy brace for about a month, but the back pain is GONE. From what her surgeon said, I think the post-op restrictions depend partially on what kind of shape you're in. My mom is older (of course) and was very out of shape, so she had fairly stringent restrictions on her activity.
I'm glad you're getting the surgery while you're still young. I'm sure you'll be glad you had it--anything must be better than living with that kind of pain.

Stephanie said...

Oh great. I might have to go for a myelogram, and now I'll really be dreading it. Hope you get relief soon!

Chris in NY said...

Hi, I came over from Jane's blog. I had a diskectomy (no fusion or instrumentation) at L4/L5 when I was 30 and have been basically symptom free ever since (that's 20 years and counting). (Ok- except when I was pregnant- so as long as you don't add 25 pounds strapped to your abdomen this would not be illustrative of your prognosis.) I have to say the diskectomy was not bad at all. Enquire if you can get a PCA (patient controlled analgesic) machine for post op and don't be afraid to use it. The only bad part was the effect morphine had on the lower body functions. But rest assured you can say no to any procedure to rectify that (and I so recommend). The surgery was the best possible choice for me. Best of luck.

Annette said...

Hi Paco... I linked from Jane's blog. No info on back problems from me... just wanting to wish you luck. Hang in there, you'll do fine. All of Jane's readers will be thinking about you.

Anonymous said...

Hi Paco - I came over from Jane's blog. I have no back injury experience except one very painful lumbar spasm that happened at work this past Friday. My doctor gave me samples of a muscle relaxer called Skelaxin, so now I like to inform people that I'm just hanging around, restin' and skelaxin'...

Anyway, sorry you're having to go through all of this. If you get through it all without a flaming painkiller addition, I'll send you a gold star and a trophy. ~Laura

Anonymous said...

Wow Paco. You have been dealing with this since you were 18? I feel for you. I am physically disabled and one thing I have always said was at least I don't have back trouble. So you will be having surgery on Thursday? I will be thinking good thoughts for you. Behave afterwards! I remember reading about you doing macho stuff when you were supposed to be taking it easy.
You write well. Keep updating!
Erin from Iowa

Paco said...

Thank you everyone for reading and commenting. I really appreciate your support and the information on recovery. Those real experiences are what seem to be lacking on the internet.

Miz S said...

Shit. I have to go to a meeting right now. Josh has had back problems. I'll see if he has any words of wisdom, or at least sympathy.

Belle said...

Oh, I feel badly for you! I've been through everything you are now experiencing, and while it is no piece of cake, you should end up feeling like the surgery was worth going through.

I've had back problems since I was 18 and two separate laminectomies eight years apart(for a total of 5 ruptured disks). Since then, several epidurals, MRIs, CTs, physical therapy, whatever helps. I think I've seen every neuro and ortho dude in town and mostly I'm now just stuck with the "five miles of bad road" that one doc called my spine. No fun.

But! I am now 57, and manage ok. I have good years and bad years and I have learned what I can do and what I cannot do. That's important! It was hard at first to realize that I can't do everything I want and that I need help occasionally to do even some simple things. I cannot stress enough that you must learn - and accept - that.

I'm glad to hear you've decided to have the surgery. I put the first surgery off for too long and that resulted in nerve damage in one leg that still occasionally limits movement and bugs me to this day. My recovery was good - 6 weeks off each time with strict limitations. I was in the hospital for 2 weeks each time, but I know that is thankfully not the case these days. I had two youngish children at the time of each operation and that was the hardest. Do not let Holly jump upwards and you try to pick her up! No, no, no. Those sudden movements will be the killers. Oh! And, be careful even walking around the yard.....if you have any uneven spots (in your yard? heh) that you step in that you weren't expecting? You will get jarring pain. Trust me on that one.

Wishing you the best of luck and a speedy recovery. Really, just let Jane baby you for awhile. Just don't use a bell to get her attention.....after his knee replacement, I about killed him for ringing that damn bell one time too many.

Belle said...

Oops, I left out the word "husband" in who I was gonna kill. Just sayin'.

crazy dog lady said...

Hi Paco, it is I, Jane's Millionth Reader (loving the mug you designed BTW) and I am wishing you well on your surgery Thursday.
I, too, had a myelogram several years ago but did not need surgery to correct my sciatica. I found out that all my life I was walking off kilter because one leg was about an inch shorter than the other. I was cured with wearing a hard rubber lift in one shoe.

I will be thinking of you Thursday and don't forget to listen to your body and give it plenty of time to heal. Don't be up on the roof adjusting the satellite dish or anything crazy like that. This is no time to be macho man. Just take it easy and let Jane put her Nancy Nurse outfit on (*snort*) and accept some TLC.
~Kathy

Oh, and Ms. Spotdog (Kel): I am sorry you had such a horrible experience with Neurontin. For diabetics like me with neuropathy and burning pain in their feet, it has been both a Godsend and a lifesaver.

daisy / stacey said...

I hope your surgery and recovery go as smoothly as possible.

I've been fighting back problems for about ten years or so. The doc thinks I have a herniation at L5/S1 and is after me to get another MRI done because the nerve problems are getting worse, but I've been putting that off due to no insurance. I hope never to need surgery for it, but being in pain all the time does get old.

Deblewis said...

Oh my! I was looking for more comments from real people who've experienced awful myelograms and I found it! The info on the web does not begin to tell you a thing.
I've experienced 6 of them now and they were ALL nightmares!
Yesterday. I had an order for one, using IV sedation. Well, I couldn't tell I'd had any
sedation at all! The darned doc told me he was going to go ahead and numb up the spot and when he put that small needle in to do that, I screamed and jumped!
That hurt, felt like lightening and metal scraping metal in my butt and down my legs. I'd felt that same thing before. I cannot take it! I cursed and told them to STOP! They did STOP and were totally discusted with me, blaming me for being anxious and not giving the sedation time to work. Hell, it had been maybe 10 minutes and IV sedation work starting working immediately. I wonder if I was really given any.
Anyway, they were all really put off by me, and returned me to get dressed. My pain doc called and got it resscheduled for later this week, using GENERAL ANESTHESIA!
Still today, I can feel where that needle went in to so-called numb the spot! I gives me the chills.
Now, I've had back surgery twice, and have had a anterior fusion with a rod and screws, from
T10-L4. Then I developed RSD/chronic pain and also have an implanted morphine pump. The pump's catheter is suspected of being blocked by bone or scar tissue right now. That is why we're having this myelogram.
This is totally disgusting and those were the MOST INSENSITIVE medical staff I've EVER encountered!
I was a nurse for 20 yrs before the spinal surgery that disabled me. I wish that hospital would allow me to give them a program on people with chronic pain and their already hightened sensitivity to ANY pain and anxiety over it.
I don't expect them to.
ANY COMMENTS??
Thanks!
Deb Lewis
South Carolina
beautybydeb@aol.com

Lulu said...

This is great info to know.

Debbie said...

Hi, Was just on the web trying to get some info on myelograms as I am havig one on Thursday, Feb. 19, 2009. I was an active person, played soccer on a ladies team for 12 years, volleyball for 25 years, climbed toboggan slide stairs in Palos Park, IL for 6 years, belonged to a gym, all the while working full-time as a Membership Director, Website Manager and Adminitrative Assistant at a priate country club in Homewood, IL. Went to a chiropractor, on the advice of my husband, a friend of his, for my exercise induced asthma and he assured me after two sessions I would be cured and would not need meds or inhalers. The first time I went he did a manipulation and crushed L4/L5/S1. I tried suing him twice and lost. Ended up with a laminectomy and was not too bad for about 4 years, although could not do the things I did before, other than work. Meanwhile I would go to the pain clinic and get epidurals, did prolotherapy (horrible - 1st time had 133 shots in my back and butt of saline and lidocaine). It was supposed to cause inflamation to the areas and my body was supposed to heal itself. About $1,000 a visit and went every three weeks for about 5 months. Helped very little. Then I started the accupuncture, accupressure, physical therapy, water therapy, water traction, etc. I tried everything there was to try. In November 2007 I went back to the surgeon because my back was so bad I could hardly do anything, including work. He did another MRI and noticed a large spur at L4. He operated and the anestheologist taped one of my eyes open so that hurt as bad as the surgery. It ended up getting infected and the dr. had to numb it and scrape the tape adhesive off it. So it hurt even more. My back was worse and I had to quit my job at the country club after 25 years and he fused L4/L5 in February 2008. Well, I got a little better and then much worse, and last week he said "no need to go to 2 doctors" and told me I would have to go to the pain clinic for the rest of my life and live on drugs. Meanwhile, I am 54 years old, been turned down by disability twice and got an atty. The pain clinic doc told me to get another opinion and that is the dr. my husband wanted to do the surgery the first time, but since my doc had been in there twice before I figured everything would be fine. This doc said he is not seeing much, if any bone grafting around the fusion and I will probably have to have another surgery. Oh, and with the fusion surgery I got 4 blood clots because the surgeon did not believe in the knee high stockings to prevent blood clots, so that was another 7 months of coumudin, not a nice drug. Now I am on dilaudid, 4 mg. several times a day, a fentyal patch 75 mg. every three days and 40-60 mg. of valium a day, which I can't take and be coherent. I have to walk with a cane and fell recently and hair-line fractured my foot, and fell another time and tore my miniscus, which I said I was not going to have surgically repaired. Maybe if I need this next surgery they can fix my knee at the same time. Life sucks, and i did figure out one thing...there are NO good days with bad backs...there are bad days and worse days. Hope everyone does better than me. Take care, Debbie

swalkerco said...

You're nothing but a cry baby. I've been unable to walk for the better part of 30 years and spend 20-22 hours in bed unable to sleep or do anything else because the pain is so bad. So far 3 of the 4 surgeons I have gone to say my problem is inoperaple so my progression will continue to decline to the point that I will have to a spinal fusion from the middle of my shoulders to the bottom of my back. If the surgery is doable at all it will take a minimum of 3 months of intensive rehab. I just had a nerve burn, called an RF that burns the nerves at the facette joint, that put me in bed for 5 weeks. Having a Myelogram is my last chance to see if I can have a surgical procedure which is going to be a lot worse that getting this stinking little test done. If I'm in discomfort for a week or a couple of days in return for a surgical option that may buy me some time before the full spinal fusion(which is inevitable at some point) I'll gladly take it.
Be a man and suck it up!
Sounds like Jane is more of one then you are.

Anonymous said...

My husband just had a myelogram on Tuesday October 20, 2009 @ Norton Hospital in Louisville Kentucky. He also saw Dr. Christopher Shields with Norton Health Care. This was the worst experience we have ever had so far. The hospital did not take his vital signs before he was discharged, they told us to go to the Dr. office and wait to see the Dr. Well his office was across the street and 11 floors up. We tried to ride the elevator and it caused a massive headache for my husband. We ended up walking 8 flights of stairs. Once we arrived he had to lay down, he had light sensitivity and had to cover his face. The entire time we were telling the Dr. and nurses and they kept telling us this was common. We live and hr and a half from Louisville in Indiana and I just wanted to get him home. It was obvious Norton Health Care could care less!! My husband was in pain like he had never experienced before in his life. Things were the same all night long and by the next morning I was on the phone calling any doctor who would listen to me. Norton Hospital wanted me to bring him back down there and i refused. I finally got a hold of his pain clinic Dr. and she said to bring him in right away. They ended up doing a blood patch but when they released him he ended up passing out in the wheel chair, so evidently it didn't work. They gave him some meds in his IV and we waited for another 2 hours and he was stable and we went home. He still has a massive head ache and can not sit up for long periods of time, 10-20 minuets then he has to lay back down. I have talked to many people about this and they all say that the hospital should have kept him in recovery longer and that they should have educated us on the side effects before we left the hospital. The hospital should have warned us not to ride elevators or climb flights of stairs immediately after this procedure. It has been 5 days and he still does not seem to be any better.

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